Welcome back to Billy's Page #62!

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 Sun. 3 Oct. 2004 sunny_storms 92°   727-898-7451 Room # 273 A

8:30pm Welcome back to Billy's Page. Today is Day +213 on Billy's BMT calendar. Todays counts are: WBC @ 2.58, RBC @ 3.03, Hemoglobin @ 10.0, platelets @ 147,000. ANC @ 1,100.
Once again, here are what the Normal blood counts levels are:

WBC: 4.0 - 10.5
RBC: 4.20 - 5.60
Hemoglobin: 12.5 - 16.1
Platelets: 150.000 - 450.000

Due to the fact that the pre-medication Billy receives before the Vancomycin, He really didn't get his day going until around 11:00am. The staff is working a new schedule for administration of this drug so that it doesn't interfere with Billy's school schedule. The next dose is due tomorrow morning at 6:00am, and Billy's class is at 9:15am. We really don't know how he will feel tomorrow, even without the drugs effect, so we'll play it by ear! Billy will be in the Hospital until at least Thursday, and he'll need to take the vancomycin (IV) for at least another week, then revert back to the Clindamycin three times per day (oral).

Alicia finally left the Hospital early this afternoon, and Billy and I had a day of Football! The Bucs dropped another one, and are now 0-4. They played a better game than the previous 3, but not good enough to win it. Maybe next week *wink*.
Click for photo I took a photo today of Billy, click the camera to have a look!! He didn't mind that I took the photo since his features are returning to "normal" (slowly).

Please Pray for Billy.........................and ALL children of cancer.

 Mon. 4 Oct. 2004 sunny_storms 91°   727-898-7451 Room # 273 A

7:30pm Welcome back to Billy's Page. Today is Day +214 on Billy's BMT calendar. Todays counts are: WBC @ 2.82, RBC @ 3.12, Hemoglobin @ 10.0, platelets @ 166,000. ANC @ 1,800.
I hope this update finds you all in good spirits. We finally had a weekend that we weren't threatened by a hurricane! It has been almost 2 months!! Billy got another late start to the day today, his dose of vancomycin wasn't given until 9:00am, but was supposed to be given at 6:00am. I really don't need to tell you all that Alicia was a "bit upset" *wink*. We do our very best to keep Billy on the schedule that was "prescribed" by his Dr's., and it never fails to get all messed up after a few days in the Hospital. Anyway........................Billy woke up at noon, missed his class, and was quite upset himself; and he let everyone know it *wink*. Billy's math and science teacher will be coming to the Hospital tomorrow afternoon to give Billy his lessons. Lets see if all goes well with his meds tomorrow. His vancomycin is scheduled to be given at 3:00am!!

Billy's counts are holding steady, and his platelets are back over the "low normal" mark. Alicia spent the day at Home, and was able to calm down some, before her next "tour of duty" at the Hospital tonight *wink*. Tomorrow is her "shot" day, lets hope she has minimal side effects.

Please Pray for Billy.........................and ALL children of cancer.

 Tues. 5 Oct. 2004 sunny_storms 88°   727-898-7451 Room # 273 A

5:30pm Welcome back to Billy's Page. Today is Day +215 on Billy's BMT calendar. Todays counts are: WBC @ 3.30, RBC @ 3.14, Hemoglobin @ 10.1, platelets @ 181,000. ANC @ 2,000.
I hope this update finds you all in good spirits. Billy's vancomycin dose this morning didn't interrupt his class's today, as we hoped. The dose was given at 6:00am, and Billy was "almost" himself by the time of his studies at 1:00pm. Billy's teacher came to the Hospital as planned, and they had a good couple hours together.

We were visited by Dr. Barbosa, and the infectious disease Dr. this afternoon, and we were informed that the infection in Billy's Broviac Catheter will have to be eliminated by removing the broviac itself. They really don't feel it is a good idea to leave it in place, and fight the infection, in hopes that it won't travel to Billy's leg. The chances of the infection spreading is far greater than they (and us) are willing to take. Of course Billy is all upset now because his Medi Port will now have to be used for the administration of the meds. That, in itself is not a problem *wink*. The problem is that there are only a couple of people that Billy is comfortable with when it comes to accessing his port. You see, Billy's port is in an awkward location; instead of being in his upper chest, it has "slipped" a bit more towards his arm pit. It is VERY difficult to locate, let alone insert a 1" needle into it's center. Instead of being a simple procedure, it has turned into a VERY painful one for Billy. We (Billy, Alicia, and I) have suggested that, when Billy is under anesthesia to remove the broviac, they should put the port back where it belongs. This way, anyone of the staff can access it with no difficulties. Billy liked this idea, lets see if the Dr's will agree *wink*. Billy really doesn't need things such as this to bother him, he has enough to worry about.................

Billy will undergo surgery tomorrow morning to remove his Broviac Catheter. You can Click HERE to refresh your memory as to what Billy's broviac looks like (not for the squeamish)

Please Pray for Billy.........................and ALL children of cancer.

 Wed. 6 Oct. 2004 sunny_storms 86°   727-898-7451 Room # 273 A

7:00pm Welcome back to Billy's Page. Today is Day +216 on Billy's BMT calendar. Todays counts are: WBC @ 3.93, RBC @ 3.43, Hemoglobin @ 11.4, platelets @ 163,000. ANC @ 2,300.
Billy's surgery was performed at noon today, and all went well. Billy has some deep bruising from when the cateter was "pulled out" through the channel made under his skin, but he should heal just fine. It is still uncertain whether or not he will get another broviac after his infection clears. Dr. Petrovic has said that he really doesn't need it any longer, his medi-port can be used for the administration of drugs. The surgeon was against re-positioning Billy's medi-port at this time, due to the possibility of infection. They did agree that the medi-port is in an awkward position, and should be moved though it will be done at a later time. They also agreed that it will be replaced with a new one, instead of just being moved. We'll just have to wait and see *wink*.

Please Pray for Billy.........................and ALL children of cancer.

 Thur. 7 Oct. 2004 sunny_storms 88°   727-898-7451 Room # 273 A

5:00pm Welcome back to Billy's Page. Today is Day +217 on Billy's BMT calendar. Todays counts are: WBC @ 3.84, RBC @ 3.03, Hemoglobin @ 10.1, platelets @ 172,000. ANC @ 2,500.
Billy had a fairly good day today, and is recovering well from his recent surgery. There were no evidence of Anaerobes present in the cultures taken from the tip of the removed Broviac Catheter, this is a "good thing" *wink*. Billy's teacher, Mrs. Mariani, came early this afternoon so that Billy could do his studies. It is a great program that the Home bound Children are involved in, if they are being treated in the hospital during the school day. If the children are up to it, they have this wonderful option of having the teacher visit them in their hospital room for class. Some kids may frown on this *wink*, but Billy really looks forward to it, if of course, he is up to it. Billy will participate in tele-class tomorrow morning. Billy's Vancomycin will now be given at the perfect time, "bed time", 10:00pm!! It took some time to get to this time, but we're there, and it will only be for another week (we hope). There is no word as of today, when Billy will be released, but we are hopeful it will be within a few more days.

Alicia managed to "sneek" home for a few hours this afternoon during Billy's class's, and catch some sleep in her own bed. Before we had a chance enjoy a "quick hug and kiss", she was off again to the confines of 2 south west. Such is the "day in the life of a cancer parent"..................................

Please Pray for Billy.........................and ALL children of cancer.

 Fri. 8 Oct. 2004 sunny_storms 88° Billy is Home

5:30pm Welcome back to Billy's Page. Today is Day +218 on Billy's BMT calendar. Todays counts are: WBC @ 4.04, RBC @ 3.01, Hemoglobin @ 9.09, platelets @ 195,000. ANC @ 2,800.
Yes, Billy is Home! Billy was released at 2pm, and is happy to be Home. It has been a LONG 8 days in the Hospital. Billy is feeling "pretty good", although very tired. His counts are holding, although his Hemoglobin is below 10.0. How 'bout those platelets *wink*, This is the highest they've been in 2 years. They will probably fluctuate some, but it is nice to see them at this level for once. Billy will remain on Vancomycin (IV) for the next 8 days, we will administer it at Home through his medi-port, which was re-accessed today before he was discharged.

We learned yesterday, that All Childrens Hospital (St. Pete.) and H. Lee Moffitt Cancer Center (Tampa) will be Joining forces, and signing a partnership agreement on this Tuesday in a ceremony at the ACH Convention Center. Billy was asked, by the head of the Oncology team at ACH, if he would Honor them by presenting the ceremonial pens to the chairmen, as they sign the deal (contracts). You see, Billy is a patient of Dr. Letson (Moffitt) who is the head of their pediatric oncology, surgery team; and Dr. Barbosa (ACH) the head of the All Childrens Hospital Oncology team (22 years), and what could be a more fitting way to Join these two fine institutions, than to have one of their cancer patients on hand to take part in the ceremony. We too, are honored *wink*.

Please Pray for Billy.........................and ALL children of cancer.

 Sat. 9 Oct. 2004 sunny_storms 88°

8:00pm Welcome back to Billy's Page. Today is Day +219 on Billy's BMT calendar.

Please Pray for Billy.........................and ALL children of cancer.

 Wed. 13 Oct. 2004 sunny_storms 85°

3:00pm Welcome back to Billy's Page. Today is Day +223 on Billy's BMT calendar.
Please accept my apologies for the "lack of update's" the past few days. I have been very ill with the flu, and I am still a bit under the weather. I wanted to let you all know that Billy is doing just fine, and I am keeping my distance *wink*. Billy and Alicia attended the conference on Tuesday (yesterday) in which ACH and Moffitt announced their partnership intentions. Billy was even interviewed by one of the reporters on hand. You can click HERE, and read all about it.

Now..........it's off to bed for me *wink* (sniffle, sniffle)

Please Pray for Billy.........................and ALL children of cancer.

 Sat. 16 Oct. 2004 sunny_storms 81°

9:30am Welcome back to Billy's Page. Today is Day +226 on Billy's BMT calendar. Todays counts are: WBC @ 5.80, RBC @ 3.48, Hemoglobin @ 11.60, platelets @ 136,000. ANC @ 3,900.
Billy had to visit the Hospital last night at 9:00pm to have his Cyclosporine level checked. This process is only done at 9am, and 9pm; and since Billy had class's at 9am, he had to go in at 9pm............got it!! Billy is doing just fine, and for the first time in a very, very long time, Billy has no tubes sticking out of his chest; His Medi Port was de-accessed last night as well. Yesterday was Billy's last dose of the vancomycin, so there was no need to keep his port accessed. To help reduce the risk of any future infections, Billy will once again be taking Clindamycin (300mg x 3 times per day).

Next week will be a great milestone in Billy's cancer treatment, as it will be the first time since before his Bone Marrow Transplant was done on March 4th that he will be allowed to take a "real" shower! He is also permitted to eat "Fresh Fruit", providing it is washed very good; Billy has been longing to have an apple. As you are all aware, Billy has been on a strict "low microbial" diet since his BMT was done. As we are so aware, that things can change from one minute to the next, Billy (and Alicia and I) will cherish every second of this "trip back to normalcy". One day at a time......................

Please Pray for Billy.........................and ALL children of cancer.

 Sun. 17 Oct. 2004 sunny_storms 81°

2:30pm Welcome back to Billy's Page. Today is Day +227 on Billy's BMT calendar.
Billy is just fine. I have been ill for the past week or so, and have been out of touch with the "outside world of cancer". It is with a heavy heart that I say that we lost 2 more precious Children to this terrible disease. Robert "RJ", passed away at ACH on Thursday, and we lost Olivia (link below) yesterday. We have been in this fight for just over 25 months now, and it is so very difficult to see the children lose a tremendous, and valiant battle. Times of hope are few and far between the terrible pains that are witnessed. Thirteen Children have passed on since Billy's battle was waged, and with each one, it becomes more painful. I just wanted to take a moment of your time and ask that you pray for the soul's of these precious Children. They deserved so much more......................

Please Pray for Billy.........................and ALL children of cancer.

 Please click on "next page" below, or above, to continue your Journey. See 'ya on page #63!



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