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 Ewings Sarcoma?
 MDS?
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Normal Blood Counts
WBC:4.0-10.5
RBC:4.20-5.60
Hemoglobin:12.5-16.1
Platelets:150k-450k
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 Fri. 30 Dec. 2005  Today is the 667 day on Billy's transplant calendar.
1,194 day's living in the "World of cancer".
We hope this update find's you well.
pacing the floor::click photo to view a larger version:: We left for the Surgical center at 9:00 this morning, and arrived there at 10:15.or so!! Billy was finally on his way to the OR (operating room) at 3:00 this afternoon *wink* Billy was not his usual self, as the wait made him fairly uneasy. As usual, the surgery went well, and lasted all of 15 minutes! We met Billy in the recovery room, and he was visibly upset as he was waking up, and somewhat emotional. He came to, and we were on our way home at 5:00pm. Dr. Letson was able to lengthen Billy's leg another centimeter, and we'll do it again in March; if not sooner. Billy will have another couple days to recuperate before heading back to school on Monday the 2nd of January.
If I don't see 'ya before then, From Our Family to your's; Please have a Very Happy New Year, surrounded by those you Love *wink*.

Please Pray for Billy........................and EVERY Child of Cancer

 Wed. 28 Dec. 2005  Today is the 665 day on Billy's transplant calendar.
1,192 day's living in the "World of cancer".
We hope this update find's you well.
First of all, We want to Thank everyone again, for all of the gift's (for Billy) and cards, we received over the Christmas Holiday. It was very much appreciated.
We arrived home from Miami, yesterday afternoon. Our trip was very pleasant, and full of "good cheer". We spent the week with Alicia's Mom and Dad (Billy's Ama, and Apa!). We also spent some Quality time with Alicia's Brother Juan, his "VERY PREGNANT" Wife Guaydia, and their Daughter, 2 year old Adriana.
We had a wonderful time, as did over 100 other guest's, at the 70th Birthday party for Alicia's Uncle Louis on Saturday evening, while in Miami as well; and spent some quality time with them at their home this past Monday. Although we didn't mind driving up to New Jersey for Christmas every year, it was nice to have a short 3 1/2 hour drive for once *wink*.

Billy will be getting his very 1st flu shot tomorrow. Dr. Petrovic included Billy in a study, and he will be monitored over the next few weeks to see what effects (if any) this will have on his "new" immune system. Dr. Petrovic see's absolutely no reason to be concerned, and this was something Billy needed anyway. We'll keep 'ya posted, of course *wink*.

****UPDATE****
Billy "CAN NOT" have his flu shot tomorrow, due to the scheduled surgery on Friday!!...oh well!!

Billy will be admitted Friday morning, for surgery to have his leg lengthened for the 3rd time. Dr. Letson (Billy's surgeon) will be doing the surgery in the Tampa Surgical center this time, because he is doing another procedure there as well. This will be a "same day release" for Billy, meaning that he will be able to go home later that day.

We also heard from the endocrinologist regarding the tests that were done. She was very happy to inform us that Billy has a "very Normal" Hormonal system, and that there is no reason to intervene. A follow-up will be done in a few months to re-check his condition.

Please Pray for Billy........................and EVERY Child of Cancer

 Mon. 19 Dec. 2005  Today is the 656 day on Billy's transplant calendar.
1,183 day's living in the "World of cancer".
We hope this update find's you well.
We will be heading "farther" South, to spend Christmas with Alicia's Mom and Dad in Miami, so, I'll be away from Billy's Page for a few days. Please know that each of you will travel with us, as will ALL the Children of Cancer. We will hold you in our Hearts, and hope that you too, are surrounded by those you Love.



Please Pray for Billy........................and EVERY Child of Cancer

 Thur. 15 Dec. 2005  Today is the 652 day on Billy's transplant calendar.
1,179 day's living in the "World of cancer".
We hope this update find's you well.
Billy had a visit to ACH today, This was a scheduled appointment with Dr. Petrovic. Billy is still having symptoms regarding his sinus, so Dr. Petrovic sent him right over to Radiology for a CT scan of his face. The results were back when we returned to the Clinic, and Dr. Petrovic wants Billy to continue with the anti-biotics for another 14 days to clear it up. Dr. Petrovic seems to think this is probably viral, since there is alot of it "going around".
Today's visit to ACH also resulted in the following blood count's:
WBC@ 7.4, RBC@ 4.40, Hemoglobin@ 13.9, platelets@ 215,000. ANC@ 4400. You can compare these to the "Normal" counts on the left side of this page.

Today was the last day of School, and tomorrow starts the Christmas break. Billy will be off until the 2nd of January!

Please Pray for Billy........................and EVERY Child of Cancer

 Wed. 14 Dec. 2005  Today is the 651 day on Billy's transplant calendar.
1,178 day's living in the "World of cancer".
We hope this update find's you well.
All is well here in Sunny St. Pete! Alicia is back from Miami, and her Mom is doing well. Alicia had an appointment with her surgeon, and will undergo surgery after the 1st of the year to remove her malfunctioning Gall Bladder. She has been in alot of discomfort the past few months, and has put this off as long as she can *wink*. The fact that she has MS has been a critical issue. This surgery can, and probably will, have a profound effect. MS is a terrible disease, and it feed's on stress. A depressed immune system is an "open door" for an exacerbation. Alicia has been doing "fairly" well with keeping her MS under control while living in the "World of Cancer"; The good days out number the bad. We'll just have to wait and see *wink*.
Billy's next surgery, to lengthen his leg, is "tentatively" scheduled for the end of this month. Again, we'll have to wait and see *wink*.
Thank you ALL for the Christmas Cards, we really appreciate it!
Please pay Emily a visit, and leave some words of encouragement in her guest book (hint!)

Please Pray for Billy........................and EVERY Child of Cancer

 Wed. 7 Dec. 2005  Today is the 644 day on Billy's transplant calendar.
1,171 day's living in the "World of cancer".
We hope this update find's you well.
Once again, I find myself having to apologize for the lack of update's. Not that alot has happened, over the past 11 day's though. Billy continue's to do extremely well, although he is still plagued by what they say is, a "minor" sinus infection. His symptoms are all but gone, but we have come to the conclusion that his cat may be the primary cause of his trouble's. Billy's cat spends 90% of it's time in his room, which we find to be very dusty. If you recall, we replaced Billy's carpet before he was released to come home after his bone marrow transplant; but we find ourselves "dusting" and cleaning his room every other day. Cat dander, and cat hair are what we notice the most. Beside's the Guest room, We have wood floor's or tile, throughout the rest of our home; which is virtually dust free. Yes, we will be installing a new floor in Billy's room *wink*, preferably wood!!

Billy has been adjusting well to his new physical therapy regimen, and is anxiously awaiting his next lengthening procedure, which is tentatively scheduled for next month. Billy has a "follow-up" visit with his primary Pediatrician on Friday, and with Dr. Petrovic next Wednesday.

Alicia left for Miami yesterday, to be with her Mom, who is to undergo a heart procedure this morning. Alicia's Mom underwent open heart surgery a few years ago to repair some damage. Please hold her in your Prayer's.

Please Pray for Billy........................and EVERY Child of Cancer

 Sat. 26 Nov. 2005  Today is the 644 day on Billy's transplant calendar.
1,160 day's living in the "World of cancer".
We hope this update find's you well.
Ama and Apa are on their way back to Miami, all is quiet on the Home Front! We had a wonderful Thanksgiving, and we hope you all did as well. Billy is finishing up his Science Fair Project, Alicia is in "Shopping Mode", and I am getting ready for the Florida, Florida State Football game *wink*. "GO GATOR-NOLES"!! I'll talk to 'ya later!!

Please Pray for Billy........................and EVERY Child of Cancer

 Tue. 22 Nov. 2005   Today is the 629 day on Billy's transplant calendar. 1,156 day's living in the "World of cancer".

We hope this update find's you well.
click to view larger image Billy is doing just fine, and his recent bout with a "cold" has just about run it's course; He still has a bit of a cough though. We still haven't heard anything about the culture's that were done last week, of Billy's throat.
To the left, is a photo of The "Mad Scientist" version of Billy, as he prepare's for his School Science Project. Although we have agreed to "supervise" this endeavor, we refuse to "get involved" *wink*! No chicken's we harmed in this experiment! Click the photo to see a larger version!
Billy resume's his physical therapy with Charlene at ACH tomorrow, and is really looking forward to it. Also, Ama and Apa are coming up from Miami tomorrow, to spend Thanksgiving with us. Speaking of Thanksgiving; If We don't see 'ya before then, Please have a Happy One! From us to you!!



Please Pray for Billy........................and EVERY Child of Cancer

 Fri. 18 Nov. 2005  Today is the 625 day on Billy's transplant calendar.
We hope this update find's you well.
Let me point you to Emily's web site, to the right; and ask that you hold her close to your Heart's. Emily has relapsed, and she needs your support, thought's, and Prayer's.

Some have asked me that, "They thought Billy was diagnosed with cancer in 2002, and why do I only count the day's since his Bone Marrow Transplant?" Well, to put it bluntly, Billy literally beat his Ewings sarcoma as it was removed from his body with his femur and knee. After Billy was diagnosed with MDS (Myelodysplastic syndrome), due to the chemotherapy he received, he was given a "slim" chance (25%) of survival. The simple fact that Billy received a life saving transplant (Thank you George for saving Our Son's Life) on March 4th 2004 (625 days ago today), I (We) consider that to be his New Birthday, and literally is. Without the transplant..........Billy would not be with us today.

Speaking of today. We took Billy out of school early today because he has had a very stubborn cough, and today it was accompanied by pains in his chest, and abdomen. We took him to ACH, where he had a chest x-ray, and ultrasound of his abdomen. Billy's chest x-ray was "very clear", and his abdomen showed that his large intestine was full of sh--!! Yes, Billy was all blocked up. They couldn't see "why" he was clogged, but prescribed a laxative to try and relieve the blockage. The concern is because, Billy is pretty "regular", and shouldn't be clogged. We'll keep track of this condition for the next few day's, and head back to ACH if "thing's don't come out" as planned.

Today's visit to ACH also resulted in the following blood count's: WBC@ 7.9, RBC@ 4.30, Hemoglobin@ 13.7, platelets@ 174,000. ANC@ 4800
So, you noticed that too, huh! The platelet count today, compared to the other day, was drastically lower. 353 to 174 kind of grabbed our attention, but the nurse said that the machine was "probably wrong", but he was still in the Normal range. Deductive reasoning, I guess *wink*....... Ok, so what if the machine was "right"? Just another bump in the road, while living in the World of Cancer.

Please Pray for Billy........................and EVERY Child of Cancer

 Wed. 16 Nov. 2005  Today is the 623 day on Billy's transplant calendar.
We hope this update find's you well.
We made an appointment with his Dr. because he has had a persistent cough for sometime now. Culture's were taken of his throat, and we were told that he "probably" has a cold, The result's will take a couple day's though. Today's visit to Billy's Pediatrician also resulted in the following blood count's: WBC@ 8.9, RBC@ 4.25, Hemoglobin@ 13.5, platelets@ 353,000. ANC@ 6500{refer to page #78 to see his last blood count's.}. To the bottom left, you'll see the "Normal" blood count's, or CBC's (complete blood count).
All of Billy's count's are in the "Normal" range, and have risen from the last check's; especially his platelet's.

Billy is Proud to say, that he made the "Honor Roll"(5 A's - 1 B) again, for the 2nd (6 week) semester. Once again, We are just as Proud!

After a couple month's of "focused pressure" on Billy's insurance, Alicia wasn't about to take "NO" for an answer. Billy was approved to continue his physical therapy at ACH, where he was treated for the past 2 1/2 year's. If you recall *wink*, Billy's insurance refused to pay to have Billy's PT session's continue there, because of "price". Billy has been receiving PT at home, from a Licensed physical therapist, 3 days per week. This was all well and good, except for the fact that no machines were involved in his re-hab. Billy needs all the "machine work" he can handle; ie: tread mill, stair climber, etc. For now, Billy's PT will re-focus on strengthening his leg's, Billy needs this intense PT, and now he'll get it.......again. He will be re-evaluated at ACH on Friday, by his longtime physical therapist, Charlene; and will start there on Monday, and He will once again go 3 time's per week after school, 1 hour per session. Dr. Letson (Billy's surgeon) is still looking at January, for the next lengthening procedure.

Please Pray for Billy........................and EVERY Child of Cancer

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